honestly my biggest fear in this is that my illness isn't actually relapse-remitting, but continuous and every interval i think it lets up i've just gotted use to the previous state of symptoms to not notice them.
these days i feel like i'm watching a house burn down from the inside - of a fire that very few seem to register the existance of. at least, not until the metaphorical floor gives way below them and they are plunged into the literal inferno.
that has been the most devistating aspect this time around, that i've been unable to hold onto my thoughts to assemble any complex or long-term thinking. if this is going to continue then i need to adapt to this or i just wont be able to function for 3-6 months at a time.
despite having wanted to read this for the month i've had it, it has been proving difficult. illness seems to be stealing chunks of time by having them bleed away from me - it isn't large consecutive blocks of time but space inbetween things and it really cuts into my management
hi, i'm demi. i have an undiagnosed illness (causing peripheral neuropathy), and suffer from severe chronic pain.
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